Reading about other people’s experiences with vasculitis can be helpful. It can give you an insight into what it’s like to live with the condition, if you don’t have it yourself. And if you’re newly diagnosed, it can help give you a picture of what living with vasculitis can be like.
But whatever your experiences, it’s important to remember that you’re not alone.
Read some other people’s stories below.
Or find out more about how we can support you, including ways to connect with other people with vasculitis.
Lauren’s story
LCTF is Lauren’s charity. She tragically died from Wegener’s Granulomatosis (Granulomatosis with Polyangiitis, or GPA) at the age of 15.
Other people’s stories:
You might also find these useful:
Factsheets
Each of the stories talks about different types of vasculitis and types of treatment. See our factsheets for information on what these mean.
Wellbeing resources
Find ways to look after yourself and your wellbeing with our range of resources.
Support groups
Sharing experiences with others can be hugely helpful as part of your journey.
Get support
See the full range of practical and emotional support we offer.
Get support
Speak to someone in confidence who understands what you're going through.
Get involved
We rely on people like you getting involved - from attending events or supporting our work, or even volunteering.
Donate
Everything we do - including awareness campaigns and support services - is funded by donations. Please help.