Pete suffered from a stuffy nose and hearing loss before being diagnosed with Wegener’s (now called Granulomatosis with Polyangiitis, or GPA). He’s been living with the condition for over 9 years.
It’s good to get the chance to share my journey with you in the hope that it helps. Vasculitis is an insidious illness that initially manifests itself over a period of around 6 months. I became increasingly concerned that the stuffiness in my nose had progressed to sinus pain, nasal crusting, facial neuralgia and then hearing loss. Within the time frame above, I had total hearing loss in one ear and around 50 percent loss in the other.
Initially, doctors were treating the effects of the condition rather than trying to determine the cause of the condition. That all changed when I eventually got a diagnosis of vasculitis. Because all my symptoms related to ENT, I initially thought that vasculitis was similar to Tonsillitis, Sinusitis, Laryngitis (because they sounded the same). A quick google search proved that there was no similarity whatsoever and that Wegener’s (now called Granulomatosis with Polyangiitis) was a real nasty disease.