I commenced treatment which involved taking large amounts of steroids, medication which DID NOT agree with me. My eyesight started to deteriorate to the point where it felt as if I was looking through frog spawn and I also developed light sensitivity.
The pain was so severe I was given injections to my eye. My joints ached and my feet burned every time I put them on the ground. Consequently, I was forced to take medical retirement. Finally, my specialist gave me mycophenolate mofetil and slowly I began to feel the difference. I remained on this medication for 17 years and went into remission. Although it was tried on a few occasions to reduce the medication, I always flared.
I had been told that vasculitis was a very rare condition and in fact was told many years ago that I was the only person in Scotland with MPA. After trawling the internet, I found a few things but nothing I could relate to in Scotland about my illness. I don’t remember how I heard about the Lauren Currie Twilight Foundation, but I noticed that there was a meeting in Glasgow.