The Lauren Currie Twilight Foundation is launching its 2018 campaign with Dr Hilary Jones. Our campaign is focusing on UK-wide GP and Primary Care staff Awareness and Education, with a series of funded e-learning modules linked to professional CPD development.
Lauren’s story is like that of many other vasculitis patients within the UK. They all share a delayed diagnosis with the symptoms of Vasculitis. A delayed diagnosis can be fatal or can cause chronic damage to vital organs affected by the disease. Lauren died in 2010 aged 15 from Granulomatosis with Polyangiitis (Wegeners), a variant of vasculitis that caused haemorrhaging in her lungs.
Lauren’s charity, The Lauren Currie Twilight Foundation, is funding and producing a series of GP e-learning modules on vasculitis, in partnership with the Royal College of General Practitioners.
Lauren’s foundation has been raising public awareness since 2010, as well as raising awareness within the medical community via the British Society for Rheumatology and the Renal Association.
This is the first GP awareness campaign that is linked to professional development for vasculitis. In raising awareness and education with UK wide GPs, we have the opportunity to raise the profile of vasculitis, diagnose vasculitis sooner and in doing so we save lives and improve the outcomes of patients.
Initial modules to be funded and produced by LCTF in partnership with the Royal College of General Practitioners. Training modules contribute to GP professional development.
Our charity is already funding and delivering an extensive range of patient support services which include regional support groups, patient respite facilities, wellbeing courses, counselling services, patient helplines, research and public awareness campaigns. Our funds are limited as we do not receive government funding and we continue to fund our existing support services through patient support.