If someone you know and love has vasculitis, it can be hard on you, too. the Lauren Currie Twilight Foundation (LCTF) is here to help as much as we can. You might not have heard much about vasculitis before, so we’ve got information on the condition, as well as life stories from other people who have vasculitis – reading about their experiences can help. And although a lot of our support services are intended for people who have vasculitis, there are some services which you can make use of, too.
How to talk to someone about their vasculitis
Different kinds of people can get vasculitis, and it affects people in different ways. Sometimes, people can be very unwell but without necessarily looking as if there’s anything wrong – so sometimes it can be easy to forget that you’re dealing with someone with a chronic illness.
Advice from people with vasculitis on speaking about their condition is:
- listen to me.
- offer practical support.
- research my condition.
- believe me when I say I’m exhausted.
- don’t be offended when I cancel plans.
- don’t give up on me!
You might find it useful to read about other people’s experiences.
Get Information
Vasculitis is a relatively rare condition, and there are different types that affect different people in different ways. You might find it useful to find out more about their vasculitis, so that you can understand what they’re going through. Our get information section has a lot of resources, including fact sheets and videos, other people’s stories and more.
Or explore the information section of our site to see all the resources available.
About vasculitis
A brief explanation in everyday language about what vasculitis is and what a diagnosis can mean.
Factsheets
Find factsheets which give information about specific types of vasculitis.
Other people's stories
Reading about other people’s experiences can help give you an insight into what life is like with vasculitis.
Get Support
Vasculitis can be hard to live with – both for the person with the condition, and for those around them. Most of our support services are naturally geared towards people who have vasculitis. But we also know that partners and loved ones need support, too. Our wellbeing service can offer practical advice on work and money worries, and coping with the strain chronic illness can put on relationships. We can offer someone friendly to talk to in a non-judgemental way. And our online support groups offer invaluable friendship and support from others how are going through similar experiences.
Or explore the get support section of our site to see all the resources available.
Speak to someone
Talk in confidence (and without judgement) to someone who can understand what you’re going through, but isn’t a friend or family.
Wellbeing service
When you’re in a relationship with someone who’s chronically ill, it can impact on different areas of your life. our wellbeing service is available to family members as well as people who have vasculitis.
Online support
Reading about other people’s experiences can help give you an insight into what life is like with vasculitis.
Get in touch
Can't find what you're looking for? Get in touch with us today and we'll do what we can to help.
Support us
LCTF is a charity run by volunteers and supported by donations. Find out how you can support us so we can continue our work.
About us
The Lauren Currie Twilight Foundation was set up to raise awareness of Vasculitis and provide support to people with the condition.